5 Lessons I learned being a carer for my Mother
I don’t often talk about it, but I was a carer for my Mother with stage 4 breast cancer for several years. While it was
Blog posts
Resources for the rare disease community
How to successfully collaborate with all rare disease stakeholders
If you want a rare disease project to succeed, it is essential for the various rare disease stakeholders to collaborate. These rare disease stakeholders may
5 reasons to consider working in the rare disease field
For rare disease patients, or those with a friend or family member with a rare disease, the choice to work in the rare disease field
How to support rare disease patient organizations all year long
There is always a surge of support for rare disease patient organizations, and the rare disease community in general, every Rare Disease Day. Unfortunately this
My top 5 sources for reliable rare disease information
Are you a patient organization wanting to communicate information about your rare disease in order to raise awareness? Or maybe you are a student wanting